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World Cancer Day 02/04/2012

2012-02-04T18:08:19Z

Today is World Cancer Day.

On February 4, we join organizations around the world in supporting World Cancer Day to promote ways to reduce the burden of cancer. Each year globally, 12.7 million people learn they have cancer, and 7.6 million people die from the disease. Cancer is the second leading cause of death in the United States, exceeded only by heart disease; it kills more than half a million Americans every year.

A Global Concern

More people die from cancer than from AIDS, malaria, and tuberculosis combined. The World Health Organization projects that without immediate action, the global number of deaths from cancer will increase by nearly 80% by 2030, with most occurring in low- and middle-income countries.

Research suggests that one-third of cancer deaths can be avoided through prevention, and another third through early detection and treatment. Despite having proven interventions for prevention, early diagnosis, treatment, and care for cancer, these medicines, technologies, and services are not widely available in low- and middle-income countries. At the United Nations Summit on Communicable Diseases in September 2011, leaders from more than 120 countries declared non-communicable diseases, including cancer, a global priority and committed to taking action to address them.

Please join us in supporting the 28 million globally currently fighting cancer.

Take the World Cancer Day Quiz:

CLICK HERE

Happy Birthday!!!

2012-01-23T17:08:43Z

Another year. Another birthday. How lucky am I?!?

About eight years ago in my support group at the hospital, I met a kind, quiet girl named Kay. Always first to volunteer to host a gathering or extend an invitation to join in her holiday plans, Kay's generosity was abundant. She often came to group excitingly doling out some new remedy she found to aid in one of our many, many maladies. No matter how many years passed, Kay never failed to send a card for a birthday, a holiday, or any occasion. Sometimes even just to say hello.

Three years ago when the group gathered to send me off for my three month journey in Texas to receive my stem cell transplant, Kay was uncharacteristically absent. She had been at the hospital all day after finding a lump in her neck. Six years after her first diagnosis, Kay learned her cancer had also returned. My heart sank. Not sweet Kay.

With a tracheotomy in the ICU this past October, Kay was uncomfortable and suffering. But she wasn't ready to give up her fight. Kay said she, "wanted more time". Kay deserved more time. She was to turn 45 in a month. Unfortunately, Kay didn't have more time. Kay didn't live to see that birthday.

Kay loved nature, loved her lake house, loved her job as an attorney. Kay loved to travel, loved to run, loved her friends and loved her family. Most of all, Kay loved her husband Rob, who never left her side.

We all loved Kay. And we all would have loved to see Kay celebrate many, many more birthdays. Today I will celebrate my birthday for Kay.

And for all those who deserved more birthdays, especially, Anne Broccolo Philbin, Jane McCarthy Goodwin, Jim Burns, Liza Marcus, Alison Coleman, Sara Western Garavaglia, Sammy Cipolla, and Claire McCall.

The best birthday present I could receive is your prayers. More specifically, that my scans in March are free of the 'something' on my liver and if not, that I find the grace and courage that those above possessed.

As always, with gratitude,

Jennifer

Update

2011-12-30T16:23:09Z

Hi All,

This is Jen's cousin Tom Jennings posting for her.

As many of you may know, Jen goes down to M.D. Anderson every three months for scans and a checkup from her wonderful Doctors and staff at MDA. Jen's last visit was a few weeks ago and tests revealed something inconclusive that requires monitoring and further testing on her next visit in March.

Please take a moment in your day to say a prayer and send some positive energy Jennifer's way. Jen is such a positive, powerful, supportive person in so many people's lives so I know everyone is good for a quick prayer in support of Jen.

Many thanks to all who read Jen's blog and who continue to be so supportive of her.

Psalm 23

The Amazing Drew!

2011-08-12T14:31:08Z

Having a bad day? If so, maybe this will put your troubles in perspective....

In Iowa, three years ago, a fifth grade boy, Drew Wall, was told he had to lose his leg due to cancer. The cancer then spread to his right lung, five times. He finished his last round of chemo last week. He is due to begin high school in a few weeks. On Friday, tumors were found on his left lung. There are no more chemo options. On his blog he wrote, "After all, I have a lot to be happy about" followed by a list that included not having to vomit from chemo any more, the fact that the tumors are now on the other lung where there is less scar tissue and his prosthetic leg which allows him to run, kick and get lots of attention from girls! He then promised to Live Strong by maintaining a positive attitude through whatever life throws at him.

I promise to Live Strong by trying to be more like this kid.

Drew's CaringBridge page, feel free to leave him a message: Drew Wall CaringBridge

XO,

Jen

Drew speaking to Team Livestrong at the 2010 ride across Iowa

Love & Gratitude

2011-08-01T16:33:10Z

Hi All,

As July comes to an end, this website has been up for three years now! I have my cousin Tom to thank for creating this amazing place for me to keep people up to date. Although, I must admit to my hesitation to do so, as it feels very egotistical to write about myself. I wonder if the posts are even read and am shocked every time I see the numbers move on the counter, which is almost at 108,500 hits!

While looking at the guestbook page, I was overcome by sadness at seeing one of the last posts. It was from Mary Firth, in November of 2009. You may remember me writing about the Firth family--Molly and I went to the same college. Sadly, Molly died at 36 of a brain tumor. I then wrote about her younger brother who died of the same cancer one year later. He was 32. I also wrote about their sister Mary, who was fighting melanoma. What I didn't write was that she lost her battle in February. Mary was 35. Molly, John and Mary are survived by their parents and two sisters. I can't even begin to imagine what their days are like. All I know is that any time I'm having a bad day, I think of them and realize how very lucky I am.

I owe all that luck to each and every one of you. Each and every one of you that prayed for me, donated, asked about me, sent a card; you are the very reason that I am still alive. For that, I am so grateful. Because of that gratitude, along with the guilt I feel for having survived while others did not, I have realized the importance of making a difference, just as each of you has made a difference in my life. Therefore, I am currently getting my Masters so I can hopefully help other cancer patients as much as other's have helped me.

Please keep up the prayers, as I go to Houston for my three month scans next week. And as always, please keep Chris Coulon in your prayers too. The graft vs. host has been affecting his vision, but he recently recovered from a few other setbacks and is feeling better this week. His spirit is immense!

With love and gratitude,

Jen

Sign on: Tell world leaders to fight the global cancer crisis!

2011-07-18T19:48:04Z

Do you believe cancer should be a global priority?

http://signon.livestrong.org/

Thank you

2011-06-21T19:04:48Z

Hi,

I received the most amazing text on Saturday. It simply read: Thank You. The text was from my cousin Tom, but I thought he had sent it to the wrong person because I certainly hadn't done anything to warrant it. After telling him so, he explained that he had been training for the LiveSTRONG bike ride across Iowa and had been thinking about me and how much I have been through, which helped him along. This is coming from a guy who broke his elbow a few weeks ago and is still going to ride 454 miles next month to raise money for people who have been affected by cancer and he's thanking me? I want to thank him, for so much....

For doing something for 28 million strangers who are living with cancer.

For asking people to donate even though that is never easy.

For taking time off of work to travel to a different state to participate in this charity event.

For taking time away from his wife and daughter.

For getting on his bike every day and riding, even when he doesn't feel like it.

For continuing to ride, even when he is tired.

For being selfless.

For caring.

I don't deserve the thank you. I haven't done anything. I thank Tom and all the people like him who are going out and doing something kind for someone else, for the sole purpose of helping others.

Thank you Tom and thank you to all who donated. It's not about the amount, it's purely the fact that you took time out of your busy day to show support for another, just as Tom is doing for all of us who live with cancer.

Love,

Jen

Gifts

2011-03-02T02:27:00Z

Every three months I am given a gift. And not just because my scans showed no tumor growth.

As I enter the cancer hospital in Houston, all the insignificant daily hassles of life are left outside the door. As I sit silently in a drab green gown in a cold, sterile room anxiously staring at the door handle for any movement, I feel like an innocent person on trial awaiting a jury deliberation. For once that door opens, I will learn my fate. Will this be the final chapter in my book of life? Those minutes seem to last for hours.

Though tortuous, those moments frozen with fear are also a gift, because they are a reminder for me. A reminder of what is important in life. As I look at the people by my side, who have traveled all this way just to sit here with me, who are just as scared as I am, my heart swells. As I think about all the people waiting anxiously for their phones to ring, to hear the results of my scans, I am overwhelmed. Overwhelmed with gratitude. Overwhelmed with love.

As I sit facing my mortality, I am not thinking about the trivial day to day pressures. Instead, I am simply thinking about those I love and those who love me.

Love,

Jen

40 & 28

2011-02-05T14:48:00Z

I recently had a milestone that I didn't think I'd live to see--I turned 40! When I was first diagnosed, I heard about a woman who had just had a recurrence after seven years and I remember thinking that if the same happened to me, I would be almost 40. It seemed unimaginable at the time. And then when I learned of my metastasis, I strived to live three years so I could at least see 40. And here I am. I couldn't have made it without all of the support I received from all of you. How grateful I am.

As most of you know, Elizabeth Edwards passed away. She was diagnosed soon after I was, the first time. I didn't give it much thought then. I didn't give it much thought when her cancer spread to her bones, until I found out that my cancer had spread to my bones a few months later. I remember telling a friend about my metastasis and she said, "Just like Elizabeth Edwards". From that moment on, I knew that I would always compare my condition to hers. When Oprah interviewed her last year, she said, "I just want 10 more years". I hoped she'd have a lot more. And I knew that if she didn't, it would scare me. Unfortunately, I was right. Her death was hard for me, as it was for a lot of people. But knowing that our tumors where in the same spots and had been for about the same amount of time, made me realize even more than I already do, how unpredictable cancer is. And how grateful I am to be 40.

When I was a young girl and would think about the future, about my 40's, I never in a million years pictured myself single, childless and having cancer. And now, 40 seconds don't go by without cancer being in my thoughts. In fact, I can't even remember what it was like not having cancer; to not think about cancer all day, every day. To not think about mortality or wonder how long I have to live. It's with me all the time. All day, every day. When I wake up, cancer. When I shower, cancer. When I eat, exercise, watch TV, read, drive; cancer, cancer, cancer, cancer, cancer. Even when I sleep, I dream about cancer. But I am not alone. Today is World Cancer Day and there are 28 million of us living with cancer. My cousin Tom is once again selflessly joining the Livestrong team and will ride his bike across the state of Iowa this July to raise money for all of us who have cancer. All 28 million of us who will never again know what it's like not to worry about cancer. Please go to SUPPORT LIVESTRONG to support him on this grueling journey. How grateful I am to have people like Tom who care about all 28 million of us.

On Sunday I will be going to Texas, as I do every three months, to be scanned. And no matter what the scans show, I will be grateful that I am still alive.

Love,

Jen

"The days of our lives, for all of us, are numbered. We know that. And yes, there are certainly times when we aren't able to muster as much strength and patience as we would like. It's called being human. But I have found that in the simple act of living with hope, and in the daily effort to have a positive impact in the world, the days I do have are made all the more meaningful and precious. And for that I am grateful." -Elizabeth Edwards

Sammy!

2010-10-30T13:59:00Z

One year ago today, a bright light ceased to shine. Many hearts broke, including mine. Sammy Cipolla was only 21, yet she fought her cancer and accepted her fate with the grace and wisdom of someone way beyond her years. 'Let It be' was the song that played during the procession out of the church at her funeral, which I found to be very fitting. Sammy touched my life in a profound way. Then again, Sammy touched many people's lives.

As many of you know, my cousin Tom rode his bike 442 miles across the state of Iowa this past July to raise money for LIVESTRONG, a foundation that tirelessly aids in the fight against cancer. After many months of hard training in the Texas heat, Tom came down with a cold as he was preparing to leave. Undeterred, he arrived in Chicago only to discover that his connecting flight to Nebraska was canceled and there wasn't another one until the following day. By that time, his LIVESTRONG team would have began their trek. Knowing that the team was on a tight schedule, one he was not going to be able to make, he looked into turning around and going back home. Those flights were oversold for the next three days. He was tired, frustrated, sick and now, stuck. But not for long. His dad/my Uncle Steve, who has been with me every step of the way on my cancer journey, drove to the airport, picked Tom up, drove him to Nebraska (where his bike and gear had been shipped), then drove him to Iowa to meet up with his LIVESTRONG team, then turned around and drove back to Chicago.

So began Tom's 7 day ride across Iowa. In the cold, wet rain. With a cold. As he pushed himself mile after mile, hour after hour, he held in his hand a piece of paper that his wife Jill had given him. Written on it were the names of people he could think about when he got tired, sore and uncomfortable. One of the names was Sammy. And on one particularly rough patch, Tom told me he thought of her and though he was miserable, he continued on. And ended up having the most amazing experience with incredible people who were all working together for a wonderful cause.

My favorite part of the story is the end. As Tom was a few miles from the finish, his chain broke on his bike. Just as the 7 days had started off with things gone wrong, it seemed as though they were now going to end the same way. But once again, it all worked out, as 2 of Tom's teammates rode up along side of him and aided him to the finish. (See picture below)

I am so grateful that Sammy's path crossed mine, even for short time, because she taught me so many valuable lessons. I strive every day to 'Let It Be', just as she did, because when I do, I am over come with gratitude for all of my 'teammates' that have ridden up beside me and are aiding me.

"Live, laugh, love............for me"
Samantha Cipolla
1988-2009

Update

2010-07-21T21:04:00Z

*Chris is out of the rehabilitation center and doing well! He is staying with Steve, going to physical therapy 3 times a week and getting stronger everyday. He's more stable on his cane and was even able to go to the Cubs game with me last week.

*Scans in May were stable again! My doctor called me his 'miracle patient'. As much as I loved hearing that, the flip side is, the other people in the trial aren't doing as well. I was #6 in the trial and #7 did the trial after discovering my web site. Unfortunately, her last scans showed a spot in her liver. The good news is that the chemo has shrunk her tumor. Now lets pray that it gets rid of it all together. Keep all the other people in the trial in your prayers and let's hope I get good results again when I go back in August.

*Celebrated my best friend Ker's 40th birthday a few weeks ago in Minnesota. During her party, a sweet girl came up and introduced herself. She asked how Chris was doing and told me how sad she was when Sammy died. She said that she checks my blog every Monday morning and had been worried since I hadn't posted anything in so long. I was completely overwhelmed after meeting this girl, for so many reasons. First, that this stranger reads my blog. To be honest, I don't post much because I feel vain doing so. But I know how I feel when I'm following someone and I'm anxious to hear their progress, any progress. It's hard for me to realize that I'm the one being checked on. Mostly though, the fact that she asked about Chris and expressed her sadness over Sammy was so touching. People really are so kind.

*Had lunch with Sammy's family last week. It was so nice to spend time with them and hear, once again, about her incredible spirit. I can't even begin to express my gratitude to them for sharing her life with me. She has taught me so many valuable lessons, as have they.

*Please keep Mary Firth in your prayers. Mary is fighting metastatic melanoma and starting yet another trial. You may remember me mentioning her before when I wrote of her sister, who I went to college with, died a of a brain tumor and then again when her brother died last year of a brain tumor as well.

*Megan and I moved into a house eight years ago and four months later I was diagnosed. We moved out of that house two weeks ago and I'm hoping to leave the cancer behind! Now that Megan is engaged and getting married in October, our landlords decided to sell the house. I am now living alone in a new apartment a few blocks away and looking forward to many healthy years here.

*Next week my cousin Tom will start his bicycle ride across the state of Iowa with the Livestrong Foundation in my honor. There are no words to justly express my feelings about this amazing journey for which Tom has volunteered. For months he has tirelessly trained and for an entire week he will ride his bike all day, every day to raise money for those of us who have cancer, in hope of a cure. Not many would do such an act, but knowing Tom, his big heart and his desire to help those in need, I'm not surprised that he has chosen to give not only his time, but his entire self to this cause. If you have not already donated, PLEASE visit his site and support him in this selfless act. DONATE HERE Thank you!

Prayers Please

2010-05-14T16:28:00Z

Please keep our dear friend Chris Coulon in your prayers. He is currently intubated in the ICU due to pneumonia, breathing difficulty and low blood pressure.

I have written about Chris in the past and shared with you what a wonderful guy he is. Most people would find one of the following situations stressful. Chris has been dealing with ALL of these over the past year or so:

*Cancer
*Stem Cell Transplant
*Graft vs. Host
*Chronic pain, fevers & vomiting
*Medication side effects
*Inability to work
*Loss of income
*Wife leaving
*Daughter moved out of state
*Sale of house
*Moving
*Staying with family & friends
*Divorce
*Custody battles
*Audited
*Insurance issues

Let's send Chris our love, support and prayers. He needs them and certainly deserves them.

We love you Chris!

Thank you,

Jen

Please Read- LIVESTRONG!

2010-04-09T02:47:00Z

Hi All,

Even though my cousin Tom has already done so much to help me and many others, I still get amazed when he offers his time and efforts to benefit others. He has done this so often, you'd think I would just be used to it by now. But I'm not. I am awed by his generosity, his commitment and his caring. I am overwhelmed by his tenacity. I am proud of his strength. I am lucky to be his cousin and blessed to be his friend. And every cancer survivor will benefit from his selflessness in doing this ride for Livestrong.

As hard as it is to ask for donations in these times and feeling that you have all been so generous already; I must go ahead and do it anyway. The reason being that EVERY SINGLE DAY Tom is quietly doing for others and asking nothing in return. He diligently works with many different charity organizations and truly wants to make a difference. Please help Tom's tireless fight against cancer, which in turn, will help millions of people like me who are tirelessly fighting to have a future.

If only it was as simple as having as big of a heart as Tom's. Unfortunately, it takes more than that. It takes research, time and mostly, it takes money. But thankfully there are people like Tom out there willing to raise the funds needed by giving their time, their effort, their endurance, their sweat. I'm not asking for you to do that. I'm just asking you to give a small donation, no matter how small, so that those special people like Tom can keep actively fighting for those of us who have cancer.

And more importantly, in memory of those who lost their battle. Their fight may be over, but ours has just begun!

Please follow the link below. Thank you.

LIVESTRONG LINK JENNINGS

Love,

Jen

Tom racing for Team Livestrong this Spring.

Happy Birthday to an awesome, awesome guy!

2010-03-16T14:43:00Z

Hi,

Although I have received more from all of you than I could ever give back, I must ask one more favor. Our good friend Chris Coulon has a birthday this Friday, the 19th, and I am encouraging people to reach out and let him know that he is loved.

Chris has been such a great friend to me and so many others. His boisterous laugh has filled our hearts many times. His warm smile has made us smile and his spirit and zest for life has created fun all around him. Although he endures more physical, emotional, and financial pain daily than most people see in a lifetime, he does it with that incredible smile. And though it doesn't shine as bright these days, he makes a conscience effort to be sure it's there. So let's put that sparkle back in his eye, if only for a day, for I know it would mean the world to him. Let's brighten his day, since he has had so many dark ones recently.

This past Saturday, Chris moved out of the house he built with his own hands. It was more than just a house for him. It was his job, his career, his dream. Of course, Mae is what is most important to him, his beloved, but since she has been living out of town with her mother since last year, he doesn't get to see her, hold her, and watch her grow every day like he wishes he could. Her sporadic visits make him glow and keep him fighting.

He would be updating all of you himself, but his chronic Graft vs. Host that has invaded his lungs has left him tired and on oxygen. He experiences frequent tremors, fevers, and problems with his blood pressure. When he is able to sleep, he needs plenty of it, for there are times, due to his medication, when he is unable to sleep at all.

On top of the physical trials, going through a divorce he doesn't want, fighting custody issues, and currently being homeless, he is now being audited as well. So.............let's show him how much we care, how much we are behind him and support him, how much he means to all of us, by sending him a text, a facebook message, an email or write on his caringbridge page. Feel free to send a card in c/o of me which I will be sure to deliver. I know these are hard times for all of us, but if you have the means to include a check of any amount, I know it is needed and would be extremely appreciated. As will any and all birthday wishes.

Chris is such a special person. I don't know why, but he has been through hell and for far too long. As his friends, we often wonder what, if anything, we can do to help. One way is to acknowledge his birthday, tell him we care, and hopefully ease his suffering, if only for a day.

With sincere thanks,

Jen

Cards can be sent to:
Jen Mosher
1926 N. Bissell
Chicago, IL 60614

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Please Vote Now!

2010-03-08T16:04:00Z

Send the Tobacco Treaty to the Senate for Ratification

Over the past few years, lung cancer has become one of the leading causes of cancer deaths in the world. This increase is overwhelmingly due to the aggressive proliferation of tobacco products across the globe.

Today, one in three people in the world will get cancer in their lifetime. By the year 2030, that number will grow to one in two. A tidal wave of diagnoses, both at home and in developing countries is about to crash and we are not doing everything we can to stop it.

On February 27, 2005, the World Health Organization Framework Convention on Tobacco Control (the Tobacco Treaty) went into force. This treaty requires countries that have ratified it to implement scientifically proven measures to reduce tobacco use and the terrible toll it takes on a country’s lives, health and economy.

168 countries have signed and ratified the Tobacco Treaty. The United States is one of 15 who have signed, but not ratified it. By voting for this idea, you will be joining LIVESTRONG Action in calling on the current administration to send the Tobacco Treaty to the Senate for ratification.

Countries who ratify the Convention commit to:

•    Ban or restrict tobacco advertising, promotion and sponsorship
•    Place large, graphic health warnings on cigarette packs and prohibit   the use of false and misleading terms such as "light" and "low tar"
•    Implement measures to protect non-smokers from secondhand smoke
•    Increase the price of tobacco products, particularly through taxation, to discourage tobacco use
•    Eliminate the illicit trade of tobacco products
•    Regulate the content of tobacco products and require public disclosure of ingredients
•    Provide cessation assistance and treatment for tobacco dependence
•    Prevent sales of tobacco products to minors

The ratification of the Tobacco Treaty will mark a vital step in building a world without cancer. Will you help us?

VOTE NOW CLICK HERE

Looking Back

2010-02-27T14:48:00Z

Seven years ago today I was told I had cancer when I answered my phone while in a 7-11 convenience store. I am so lucky to still be here. I am also grateful that my scans, done earlier this week, showed no progression!

I am still awed by the kindness and generosity of people. After chatting with a couple at the next table in a restaurant and exchanging info, I came home a few days later to a package at my door. Along with a sweet note from them was a gorgeous necklace that had 'expect miracles' inscribed on it. People are amazing. I have been so fortunate to meet and hear from the most thoughtful people. No matter how many times these things happen, I still tear up, get the goosebumps and am overwhelmed. Thank you Jenni and all of you that have been so very kind to me. It truly is what keeps me going.

I have four friends walking in the Avon 2 Day Walk for breast cancer this year. My sister Colleen and her friend Sharon walked on my behalf a few years ago. I was so touched and proud. For someone to raise money and give their time shows just how much people care about one another. Please visit avonwalk.org if you would like to support any of these special people:

Alison Stein, Texas
Audrey Stein, Texas
Jennifer Lala Muvilla, Chicago (sadly, her mom lost her battle a few years ago)
Karen Gariti Koslowski, Chicago (a survivor!)

These past 7 years have been extremely hard, but all the pain is over shadowed by the abundant support and love I have received from all of you. I am truly grateful, from the bottom of my heart.

Love,

Jennifer

World Cancer Day Today!

2010-02-04T15:27:00Z

World Cancer Day 2010, led by UICC, its members and with the support of the World Health Organization (WHO), will raise awareness of cancer prevention.

Each year, over 12 million people receive a cancer diagnosis and 7.6 million die of the disease.

The good news is that approximately 40% of cancers are potentially preventable. We invite you to join us in marking World Cancer Day on 4 February by promoting our exciting new campaign and spreading the message that cancer can be prevented too.

This coming February, UICC will launch the campaign “Cancer can be prevented too”, focusing on how the risk of developing cancer can significantly be reduced through simple measures:

Stop tobacco use and avoid exposure to second-hand smoke
Limit alcohol consumption
Avoid excessive sun exposure
Maintain a healthy weight, through eating healthily and exercising regularly
Protect against cancer-causing infections

http://www.worldcancercampaign.org/

Thanks!!!

2010-01-26T21:21:00Z

Hi,

Last Saturday I celebrated another birthday. How lucky I am. Not only for another year, but for all the kindness bestowed upon me. My family and friends are extraordinary, especially those of you who sent me '1 year old birthday cards' on the anniversary of my stem cell transplant on November 21. Aunt Colleen and Uncle Steve marked the occasion by sending beautiful flowers, which started the day perfectly. Two birthdays in two months--I like this!

I owe a long over due thank you to Mindy and the kind people at I've Been To A Marvelous Party who generously donated my beautiful thank you cards. She was so helpful and caring and I was overwhelmed when she informed me that I would not have to pay, especially since I needed 500 of them! Which brings me to another huge thank you--again to all of the 500 people who donated to my fund. The words 'thank you' just don't seem to do justice to the feeling of gratitude that overflows in my heart, so I will simply keep saying it over and over so you know that not a minute goes by that I don't think about the generosity of each and every one of you.

Another heartfelt thank you goes out to my local dry cleaner, De Paul Cleaners, for refusing my check and treating me to free dry cleaning from now on. When I returned after a long time away due to the transplant, I was greeted by hugs, tears and sincere joy. I know that when they said they were praying for me, they truly meant it. How refreshing it is to know that even in a big city, people care about one another.

Now that my body is a year old, I have started receiving my immunizations all over again. I am supposed to get five at a time, but seeing as I am only able to get shots in my left arm (due to the risk of lymphedema from lymph node removal on my right side) and that is too many for one arm, I only got three this time. But now I know why all the babies are crying so hard in the doctor's office. Not from the needle, but from the immunization itself. It burns!

I'm off to MD Anderson again in February, so I'll be back here asking for prayers once again. Until then..............

Love and hugs,

Jen

Inspiration

2009-12-18T17:44:00Z

Please take a moment to look at the stories of these two amazing young men and their battles with cancer.

Jake Olson

http://espn.go.com/blog/sportscenter/post/_/id/6341/one-last-look-usc-draws-inspiration-from-fan

Jimmy Fowkes

http://livestrongblog.org/

Important Clinical Trials Amendment Filed in the US Senate

2009-12-08T19:35:00Z

Important Clinical Trials Amendment Filed in the US Senate

by Brooke McMillan (LAF Staff)

Clinical trials are critical to cancer research. These studies help doctors find ways to improve health and cancer care. Clinical trials are designed to answer scientific questions and to find better ways to prevent, diagnose, or treat cancer.

Unfortunately, very few adults participate in clinical trials due to a number of barriers. In 2003, there were approximately 1,700 ongoing clinical trials, of which the National Cancer Institute (NCI) sponsored 1,200. Despite this large number of trials, only 3 percent of adult patients participated, while 20 percent were eligible. The participation rate for children is much higher. About 55 to 65 percent of children diagnosed with cancer by or before age 14 enter an NCI-sponsored clinical trial.

One way to improve the rate of participation by adults is to require insurance companies to pay the cost of routine medical care participants receive in a clinical trial. Some health plans do not cover these costs, including doctor visits, hospital stays and lab tests. This is a significant barrier to participation.

More than half of the states in the U.S. have passed laws to require health plans to cover these routine costs. Fortunately, there is an effort in the Senate to ensure that these costs are covered for all Americans.

Senator Sherrod Brown (D-OH) and Senator Kay Bailey Hutchison (R-TX) have joined to offer an amendment to the Senate health care reform bill that would prohibit insurers from dropping coverage because an individual chooses to participate in a clinical trial and from denying coverage for routine care that they would otherwise provide just because an individual is enrolled in a clinical trial.

This amendment would apply to all insurance products, including those offered in the Federal Employees Health Benefits Program, and to all clinical trials that treat cancer or other life-threatening diseases. States that go above and beyond the federal standard laid out in the amendment would not be preempted.

We appreciate Senators Brown and Hutchison for their leadership in offering this amendment. Please contact your Senators and ask them to cosponsor Amendment #2871 – the Brown-Hutchison clinical trials amendment. You can call, email and tweet your elected officials. You can sign up for a twitter service called 2gov.org to auto tweet all your elected officials. Go to http://2gov.org to get started.

With hundreds of amendments competing for time on the Senate floor, we will increase the likelihood that this amendment will be considered if we can show support through co-sponsorships.

For more information about clinical trials or to find out if you are eligible for a clinical trial, contact our LIVESTRONG SurvivorCare program at 1-866-673-7205.

http://livestrongblog.org/2009/12/08/important-clinical-trials-amendment-filed-in-the-us-senate/