Thank You!
Hi All,
I so appreciate every email, note, card, gift, package and food delivery sent by so many generous people, but there is one piece of mail that deserves a special mention. An amazing little boy named Ethan, who is the nephew of my dear friend Marcy, asked his first grade class to make me get well cards. These 12 children have never met me and most likely never will, and yet they took the time to brighten my day with their colorful art work filled with flowers, hearts, rainbows, and butterflies along with ambulances, stretchers, hospitals, and portraits of me. These five and six year olds sincerely encouraged me by writing "Jen is 'grate'", "Jen you are the best", "I hope you feel better Jen I REALLY do", "Jen is a good person", "Jen is a superstar" and my all time favorite, "Feel better in a few days because you rock!". I have always believed that the job of an adult is to make every child feel special; to encourage them and tell them that they are 'grate', but yesterday Alex, Eli, Ethan, Gabriel, Jonathan, Julia, Lola, Madie, Samantha, Sami, Shir and Sofia in Dallas turned the tables on me and showed how touching it is when the children are the ones doing the cheering. There is pure goodness in it. Just like when I was talking to my four year old niece, Kathleen, on the phone a few days ago and she was telling me about her Christmas tree. She said they didn't have a 'topper' for it but that she was going to get an angel for the top and "it's gonna be just for you. Just for you Joo Joo (my nickname)". Now that rocks!
I so appreciate every email, note, card, gift, package and food delivery sent by so many generous people, but there is one piece of mail that deserves a special mention. An amazing little boy named Ethan, who is the nephew of my dear friend Marcy, asked his first grade class to make me get well cards. These 12 children have never met me and most likely never will, and yet they took the time to brighten my day with their colorful art work filled with flowers, hearts, rainbows, and butterflies along with ambulances, stretchers, hospitals, and portraits of me. These five and six year olds sincerely encouraged me by writing "Jen is 'grate'", "Jen you are the best", "I hope you feel better Jen I REALLY do", "Jen is a good person", "Jen is a superstar" and my all time favorite, "Feel better in a few days because you rock!". I have always believed that the job of an adult is to make every child feel special; to encourage them and tell them that they are 'grate', but yesterday Alex, Eli, Ethan, Gabriel, Jonathan, Julia, Lola, Madie, Samantha, Sami, Shir and Sofia in Dallas turned the tables on me and showed how touching it is when the children are the ones doing the cheering. There is pure goodness in it. Just like when I was talking to my four year old niece, Kathleen, on the phone a few days ago and she was telling me about her Christmas tree. She said they didn't have a 'topper' for it but that she was going to get an angel for the top and "it's gonna be just for you. Just for you Joo Joo (my nickname)". Now that rocks!
I have a friend from college that is a Houston Fire Chief named Alison. Since I've been here, Alison has been donating blood and platelets for me at MD Anderson and asking her friends to do so as well. She is even holding a blood drive in my honor on Jan 8th. Alison realizes the importance of blood donation and although it can be an inconvenience and time consuming, she does it anyway. She is also going to host a blood drive on Jan 27th
for all fire fighters who are burned on duty. It may seem like there is
plenty of supply, but when I have been having my transfusions, the
small IV bag has the donation of six people's platelets and has a very
short window to be used before it must be discarded. Platelets
are in high demand for transplant patients and burn victims because
they aid in clotting the blood. Without transfusions people would die.
So if you can, please consider donating some time. I'm so lucky to have
such a wonderful friend like Alison. She rocks!
I
continue to go to the hospital often to check my blood counts, which
have been slowly rising. I was nervous about some new bone pain but was
told that it is a good sign because it means my bones are trying to
remake the marrow that was destroyed in the radiation process. I still
am weak and easily tire after the most mundane activities, but have
been enjoying the steady stream of visitors. As you know, Megan came
down for Thanksgiving
and her sister Annie came in from LA as well. We had a quiet but nice
day, enjoying the fact that we were able to have drinks and appetizers
out by the pool. Steve McCall was the next one to come which was
incredibly great. Steve always knows how to put a smile on my face and
make me laugh. I would have held him captive here to stay with me until
I can go home, if I had any strength! I love having Steve as my cousin.
I love having Steve as my friend. I love having Steve as my biggest
supporter. I love Steve and appreciate all that he has done for me. My
sister Maribeth made it here for a quick trip which was wonderful,
especially after her last trip was cancelled due to her cold. (Because
of my compromised immune system I cannot be around anyone who is sick.)
I hadn't seen Maribeth in two and a half months which is such a huge
contrast from seeing her almost daily at home. I completely
over-extended myself and am absolutely exhausted, but I relished every
moment she was here and would not have changed a minute of it. It was
hard to watch her drive away. My cousins Tom and Jill are coming
tomorrow, which I am extremely excited about.
My days here in Houston are winding down. I may find out an exact return date when I see my doctor on Wed.
In fact, I was able to get my central line (or cable wires, as I like
to call them) removed from my chest today! The word I would use to
describe this is freedom! I can actually shower now instead of having
to take baths. No more daily Heparin shots. No more daily alcohol
cleansing. No more biweekly cleaning and bandage changes. No more
weekly cap changes. No more discomfort!
Lastly,
but certainly not least, one year ago from yesterday I was told that my
cancer had returned. I soon learned that it had metastasized to my
bones, deeming my cancer incurable. One year ago I didn't even know if
I would be alive in a year. I never fathomed that I would be in Texas
participating in a trial that involved a stem cell transplant.
Because of Dr. Ueno's research, I have hope. Because of all of you, I
am here. Because of all of you, I now have hope of a future. Thank you.
You all rock!
Much love,
Jennifer

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